John Mark, who is 28 years old, was born with a genetic birth defect, called DiGeorge Syndrome also known as 22q, His medical condition includes Spina Bifida, hydrocephalus with a VP shunt, congenital heart defect, an ileostomy and an ostomy bag, neurogenic bladder, and autistic tendencies. These terms are unfamiliar to many, but to him, they are just a part of who he is.His whole life has been filled with a variety of surgeries, doctors visits and medical procedures. He has had over 30 surgeries on almost every area of his body.
He is now scheduled to have open heart surgery to correct an aortic root dilation on Monday, August 13, 2012. This condition was discovered during a recent routine cardiology check up.
John Mark sees a variety of specialists that oversee the different areas of his medical condition. When he was five months old JM had successful open heart surgery to correct two holes in his heart. After being followed for the first few years of his life by a cardiologist we stopped going because all was healed and was working properly.
That was over 20 years ago.
What has happened these past few weeks has been a miracle, a realization that God is fully involved in John Mark’s life. I believe that He gave me the idea that JM needed to see a cardiologist for a check up. Our primary doctor referred us to a specialist, who, during our visit discovered that JM has an aortic root dilation. This was a complete surprise to all of us and totally unexpected.
John Mark then had further testing at Northwestern Memorial Hospital by their team of congenital heart specialists. It is at their recommendation that JM have this surgery to correct the problem. If this part of his heart was left unrepaired it could eventually rupture and it would be fatal.
So, you see how the Lord knew that JM’s heart had this problem, He had me get JM the help he needed, and that now this surgery will help save his life. God is good! He is with us to save us! I praise Him for being involved in our lives.
Will you please pray with us as we prepare for this surgery?
Please pray for John Mark. He has many anxieties over this operation and we want him to be as comfortable as possible in these weeks ahead. Also, please pray that his healing process would be free from complications, and that he would return to full strength safely. His recovery could be a long one…at least 6 weeks.
Please pray for the doctors and medical staff that will be taking care of him. Surgery will be done at Lurie Children’s Hospital in Chicago on Monday, August 13, where JM will receive the excellent care that is appropriate to his medical and developmental condition.
Please pray for Mark and me, our daughter, Alyssa, and our families as we prepare ourselves to be there for John Mark during this very important time in his life.